Thursday, 11 June 2009

Sometimes I wonder...

why I feel so passionate about fighting for causes and those who cannot fight for themselves...

then I remember it's because I KNOW how hard it is to fight for yourself

Currently I am struggling with my employer - never mind the "we're a caring employer" impression they give out - I am currently one step away from formal procedures due to my absences - the same formal procedures used for people just taking the pee. I can't be dealing with that kind of stress - I have a chronic illness, an illness I told them about before even being employed and have been nothing but upfront with them about it throughout all the time I have had off. But do they care? Nope, they just see that the amount of days I've had off have hit the corporate triggers and so let's just fill in forms and tell our employee she is under review and any more absences this coming month (just one month after a major operation that she is still recovering from when she might just need some time off) one more day off during this month and that'll be that.

So - I am emotional as hell due to my hormones, exhausted beyond belief and terrified of making myself worse as I have done in the past by working beyond my ability to cope, sinking into the beginnings of depression and what do they do - they add to my stress. I used to love my job - in fact the job itself I still do love, but I feel like it is killing me. And it made me realise that the only time in the past 8 years I have not been like this was when I was working part-time at the uni - I was depressed and exhausted and ill at uni, whilst working at both nurseries and again now. It is like I don't have the stamina for full-time work - especially the kind I enjoy which means I am on my feet, up and down, round and round, serving people or caring for people. I just can't do it but have no choice but to continue. I do so love my job, but is it worth my health?

As it is I have 90% decided not to do my tour guide training - can you imagine me losing what little free time and energy I have left to studying for something even the healthiest people tell me is "extremely challenging"? Besides, I recently started writing again and I want to do that... or should I expand and say that I started writing again whilst on sick leave after the op and for the first time in years it began to truly flow because I was feeling relaxed - since going back to work I have written nothing and lost all confidence in what I was writing - all because I was stressed. I need to rebalance.

I'm looking forward to the forthcoming edition of endolink as it is focussing on women and the workplace. I am also looking into the possibility of having my endo classed as a "disability" for work purposes - because why should I be measured against the same absence targets as someone in perfect health who never needs time off sick? I go in when I feel like hell and have to be really bad to stay off, which just shows how ill I have felt, and yet because I have had so much time off I don't even get full pay when I'm off work now. How stinky is that?

My dad told me not to stress so much (in a nice way not an uncaring way - he is a manager and he knows how it works and how stupid it can be and he also knows me and how stressed I get and how stresed he gets and he feels so helpless - he is a true warrior for those who need it, yet wise enough to let people fight for themselves when they can!) Anyway he said I have done everything by the book - I have been honest with them from the start and they have no means to touch my job in any way because of it. That's not the point though - the point is they are doing this in the first place instead of reading the occupational health report and my drs notes and the forms I have to fill in constantly and seeing that it is all related to the one thing I cannot control. THAT is why I feel it is so important to fight and why, for the foreseeable future, I may just focus this blog on spreading endo awareness... I just may!

1 comment:

Mary said...

It is bad that employers do not understand about chronic illness. that situation to discloses was appropriate but with other disabilities like mental illness I would think twice about disclosing information.